Researchers call for closing gap in collecting racial and ethnic data in studies of rare genetic condition
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11 July 2022Researchers call for closing gap in collecting racial and ethnic data in studies of rare genetic condition
In a review of published research papers, investigators from the Johns Hopkins Medicine Hereditary Hemorrhagic Telangiectasia (HHT) Center have identified a substantial lack of racial and ethnic data that may be negatively impacting the treatment and diagnosis of this rare disorder in diverse patients.
